What’s New
NF1 Project Seeks Study Participants
A group of Australian researchers are doing a study to learn more about cutaneous neurofibromas (benign skin lumps) in adults with NF1. They aim [...]
Big Shift in U.S. Policy Regarding Open Access of Scientific Research
The Biden Administration announced a new requirement, to be implemented as soon as the end of 2025, that the results of all scientific research be [...]
2022 NF Conference Overview
The NF-OSI team from Sage Bionetworks presented three different open-science focused projects at the 2022 NF Conference in Philadelphia, PA between June 18-21. Didn’t attend [...]
