NF1 Project Seeks Study Participants
A group of Australian researchers are doing a study to learn more about cutaneous neurofibromas (benign skin lumps) in adults with NF1. They aim [...]
Big Shift in U.S. Policy Regarding Open Access of Scientific Research
The Biden Administration announced a new requirement, to be implemented as soon as the end of 2025, that the results of all scientific research be [...]
2022 NF Conference Overview
The NF-OSI team from Sage Bionetworks presented three different open-science focused projects at the 2022 NF Conference in Philadelphia, PA between June 18-21. Didn’t attend [...]
N-TAP Announces an RFA for Biology and Therapeutic Development for NF1 Associated Cutaneous Neurofibromas
The Neurofibromatosis Therapeutic Acceleration Program (NTAP) (www.n-tap.org) is a philanthropic research entity based at Johns Hopkins University School of Medicine dedicated to the discovery [...]
Researcher Spotlight: Astrid Behnert, M.D.
What is your name, title and institutional affiliation? Astrid Behnert Department of Pediatrics, Benioff Children’s Hospital University of California, San Francisco What is your role, [...]
Researcher Spotlight: R. Taylor Sundby, MD
What is your name, title and institutional affiliation? R. Taylor Sundby, MD Advanced Clinical Fellow Pediatric Oncology Branch, National Cancer Institute, National Institutes of Health [...]